As many of you know, I work with adults who have a developmental disability.
I love my job.
Many people I serve don't talk a whole lot. Or they say things in a way that doesn't quite make sense...to me at least. But most of the time, if you listen closely enough, they are bang on in the way they can summarize life.
Last night, we had a baby shower for one of our employees. The room was packed with staff and people using services. One guy came up to me and pointed to my pump.
"Whazzat?" he said.
"It's my insulin pump. I have diabetes" I replied.
"Why?" he asked.
"I have no idea" I answered.
"That sucks" he said and walked away.
Pretty much summarizes it doesn't it?
Type 1 diabetes - we can guess why we have it but no one really knows. Was it the result of my horrible car accident? Was it genetic? Did I do something to get it? There is no way to know but, whatever the reason, it totally sucks.
But it sucks in a way that's not really worth stressing about. It's not like how losing your wallet totally sucks. Or getting stuck in an elevator totally sucks. This totally sucks for the long haul so we just get used to the fact that it totally sucks and then carry on.
I'll let you all in on a little secret. Do you remember how last week I mentioned that I was chosen as one of this year's Global Heroes? Well, I received an email on Monday with a list of questions they wanted me to answer about my running, my diabetes, my insulin pump and what inspires me. One of the questions asked was: what I would say to someone whose life has been affected by a condition similar to mine?
I thought for a few minutes and came up with this: Use diabetes as a motivator not an excuse and you'll be amazed where it can take you.
So yeah, it totally sucks.
What are YOU going to do about it?